Celebrating a Remarkable Journey: Living with Cerebral Palsy
As a consultant clinical psychologist, I have had the privilege of working closely with an exceptional individual. Today, I want to honour his courage and determination in facing the challenges of living with cerebral palsy.
Cerebral palsy is a neurological disorder that affects body movement and coordination. It varies in severity and can range from mild motor difficulties to significant impairments.
Stats show that cerebral palsy affects around 17 million people worldwide, making it the most common motor disability in childhood. Living with cerebral palsy can be a lonely experience, with individuals like our friend navigating a world that often fails to understand their journey. Daily challenges can lead to issues like clinical depression.
In his own words, he shared the challenges he faces physically and emotionally. He highlighted the internal struggle of wanting to live a full life, yet coming to terms with the inevitable hurdles that come with aging and increasing fatigue. He also longs for connection and wants to express his thoughts and frustrations.
He has downplayed the impact of his disability perhaps to convince himself that he can blend in with the crowd. However, deep down, he recognises the importance of acknowledging its seriousness and embracing the support he deserves.
His story emphasises the power of vulnerability. Admitting challenges is a courageous act of self-awareness. It has allowed him to find strength and comfort.
His accomplishments defy expectations of those who told him when he was 20 he would need full-time care by the age of 40, as he is a successful CXO and in a stable, loving marriage.
Each person's journey with cerebral palsy is unique, highlighting the diversity within the community.
By sharing his story, we shed light on the social construct of disability. Imagine a world where talking and walking like him was the norm - a world where he would be considered "normal." Let's strive for a society that embraces diversity and moves beyond preconceived notions of ability.
Help and support:
Scope is the main UK charity for people with cerebral palsy and their families.
